So last week we had a FULL week of positive school days! SHe's earned all of her smarties! (side story, she has a bracelet with her day broken into 10 parts and if she earns the designated amount of stickers ( i think 7 or 8) she gets a roll of smarties at the end of the day. She's been getting 9 or 10 and happily eating them on the 3 minute drive home! It's been great!
On another note, we are HAPPILY planning our halloween costumes. Kaelyn is going to be a bat. Aria is going to be a "ghost fairy". Yep. Pictures to follow. But I now HATE tulle with a passion! WITH A PASSION!!!
I saw the "stats" page before I saw that someone in Germany and France read my last post! Pretty Cool! Hey guys! I'm so glad for the people I've been connected with through this post! Several parents of kiddos similar to Kaelyn. We all are on the same road. The Unknown Road. So go forth! Have a great day! I know we are on the right path. The happy (for now) path.
Lots of love from my family to yours,
Lara
We are just beginning our lives with a beautiful daughter who was recently diagnosed with Partial Trisomy 21. Its not common, infact its pretty rare from what we were told, so we have NO Idea what the future holds for us. Hang on for the ride of our lives!
Monday, October 17, 2016
Tuesday, October 11, 2016
a turn around!!
I'm not sure what has changed. But Friday and today have been GREAT days. Kaelyn's SPED teacher even helped her leave me a voicemail on Friday. The majority of the voicemail was "hip hip hooray! We had a good day!" And today her teacher stopped and told me that whatever we were doing, to keep it up. It feels good to have turned our school time around in a positive direction. I think part of it might be the essential oils too. We haven't really modified any of our routines, or our diet, or anything else huge. The EO is really the only big change. I don't know if its all in her head or if it is truly and really helping, but if we can keep up the momentum until she builds up a solid routine and confidence, I think it will only help in the long run. We'll see how the rest of the week goes, but I see a light at the end of the tunnel!
Friday, October 7, 2016
Rough Waters
We are having a rough go of things, as of late. So that is partially why there hasn't been an update in more than a few weeks.
Kaelyn is having a rough time transitioning at school. I don't know if the pace is too much or if the class size is overwhelming. (she was in a class of 9 last year, its 18 this year.)
She is getting pulled to the special education room for extra help more than anticipated and she's started to pout/shut down a bit too. The shut downs lead to more time in the special education room too. It's frustrating because I've been told that they are at their "wits end" and "scratching our heads to find a way to help her". So the next plan of attack is an Educational Psychologist. Hopefully they can figure out a way to help her as it sounds to me, from a mothers stand point that they just don't know what to do any more and are baffled. And that bothers me as She's barely been in school a month (just a little over if I check the calendar, I'm sure.) and she's disrupting her peers and her own education and nobody is happy. Her teacher's seem frustrated and floundering and I think it may be rubbing off on Kaelyn. I dunno. We are at a standstill. I know mainstream is working for so many kids and I hate to see Kaelyn so defeated every day when I pick her up. SOMETHING has to change. And I dont even know what. Or where to begin. I dont think this week helped with her having a test in another city on Tuesday, and when she gets stressed she doesn't go potty. So she had the worst time of having a tummy ache that we FINALLY got taken care of last night. But darn it. Is it too much for a mommy to hope that our kiddos have an easy time? Or if they have troubles, we just want them to be lesser than they are! For her to have an easy day once in a while so that the teachers don't cringe (I'm guessing) when they see my little red car roll up to drop her off in the morning.
Kaelyn is having a rough time transitioning at school. I don't know if the pace is too much or if the class size is overwhelming. (she was in a class of 9 last year, its 18 this year.)
She is getting pulled to the special education room for extra help more than anticipated and she's started to pout/shut down a bit too. The shut downs lead to more time in the special education room too. It's frustrating because I've been told that they are at their "wits end" and "scratching our heads to find a way to help her". So the next plan of attack is an Educational Psychologist. Hopefully they can figure out a way to help her as it sounds to me, from a mothers stand point that they just don't know what to do any more and are baffled. And that bothers me as She's barely been in school a month (just a little over if I check the calendar, I'm sure.) and she's disrupting her peers and her own education and nobody is happy. Her teacher's seem frustrated and floundering and I think it may be rubbing off on Kaelyn. I dunno. We are at a standstill. I know mainstream is working for so many kids and I hate to see Kaelyn so defeated every day when I pick her up. SOMETHING has to change. And I dont even know what. Or where to begin. I dont think this week helped with her having a test in another city on Tuesday, and when she gets stressed she doesn't go potty. So she had the worst time of having a tummy ache that we FINALLY got taken care of last night. But darn it. Is it too much for a mommy to hope that our kiddos have an easy time? Or if they have troubles, we just want them to be lesser than they are! For her to have an easy day once in a while so that the teachers don't cringe (I'm guessing) when they see my little red car roll up to drop her off in the morning.
Staring at their salt-water tank in the radiology lab at Mn Children's St Paul.
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